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Resource Help Center Manager - Bilingual Spanish/English Nurse
Position Objective: Provide information and resources to affected individuals, their families and friends, and other interested parties seeking a diagnosis, thereby increasing the understanding of Marfan, Vascular Ehlers-Danlos (VEDS), Loeys-Dietz syndromes (LDS), and other related genetic aortic and vascular conditions. Connect affected individuals and their family members to other affected individuals and family members with similar features and/or psychosocial issues to provide peer support. Develop and maintain strong relationships with physicians and other allied health professionals to assist patients and other interested parties in treating Marfan, V
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